Friday, January 16, 2009

The Question

Here's a question that no one seems able to answer (at least not definitively).

While I am eating gluten-free, the purpose of which is to repair my damaged small intestine, can I eat dairy products, or will I continue the damage?

Ignoring the convoluted nature of the question, basically, I want to know if I eat cheese and drink milk, will my belly still heal itself, since I have knocked off eating bread and all the other tasty gluten products.

Here is what a volunteer with the Gluten Intolerance Group (www.gluten.net) has to say:
"If you are lactose intolerant and not avoiding dairy, you are delaying the healing process. You should not be intentionally consuming dairy until you are healed and then incorporate it slowly to see if your body can tolerate it. As to how long it will take, every individual is different and depending on their avoidance of having accidental or intentional ingestion will determine the length of time to heal. I hope this helps."

Here is what the celiac disease foundation (celiac.org) had to say:
"Many celiacs are lactose intolerant. That does not mean you are causing yourself harm. But taking the Lactaid tablets and drinking lactose free milk will help you digest dairy products. Sometimes, we overcome the lactose intolerance after we are on the GF diet for quite a while."

And a volunteer with the National Foundation for Celiac Awareness (celiaccentral.org) said:
"Thanks for contacting the NFCA your question. I am also lactose intolerant. You are not harming your intestines by eating dairy. The discomfort you may feel after eating dairy is because (like many, many adults) your body no longer produces the enzymes to help digest the sugars in dairy product (that's basically what lactaid is - the enzyme that digests the sugar). So, it's fine for you to eat dairy and take a supplement - just make sure the supplement is gluten free. But, you might be interested in knowing that there are some cheeses that are naturally very, very low in lactose: Asiago, Blue, Brie, Camembert, Cheddar, Colby, Edam, Gorgonzola, Gouda, Gruyere, Havarti, Limburger, Monterey Jack, Muenster, Parmesan (that you grate yourself – not out of a green shake can!), Port du Salut, Roquefort, Romano, Stilton, Swiss. Basically, firm, aged cheeses tend to be low in lactose. Fresh, creamy cheeses like feta, mozzarella and ricotta have more lactose. Also, some lactose intolerant people are able to digest goat milk product more easily. Hope this information is helpful for you."

While I really appreciate the fact that people have answered my email from all three of these organizations, I still don't feel particularly comfortable with the answers. I also called a nurse line associated with my insurance company and got another wishy-washy well-I-don't-see-why-you-couldn't-eat-dairy sort of answer.

It was a big step for me to give up gluten. And it took me three years to decide to finally do it. I don't know if I can say no to dairy too. So, if anyone out there in cyber-land knows the answer-- and can back it up with some reference (preferably scientific), I would love to know.

3 comments:

  1. You know you are gluten intolerant and have given up gluten! Very good! You do not state if you KNOW that you are lactose intolerant, or if you just feel that you should not have it. If you know you are also lactose intolerant, give it up, if you are not - go enjoy. An allergy doctor should be able to test you for lactose intolerance. Many celiacs find that along with being gluten intolerant, they also need to be casein free. This is a GF/CF diet and is quite common. Casein is the protein in milk products while lactose is a sugar. Gluten is also a protein, which is found in wheat, rye, and barley. Best wishes and feel better.

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  2. The American Gastroenterological Association has an article about lactose intolerance that may offer you the scientific backing that you are looking for. Basically, the article speaks to managing the symptoms of lactose intolerance and does not indicate any long-term consequence/harm to the lactose intolerant person who consumes lactose. The link to the article is: http://www.gastro.org/wmspage.cfm?parm1=854

    Best,
    Loretta Jay
    Director of Program Development
    National Foundation for Celiac Awareness
    lorettajay@celiaccentral.org

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  3. Thank you both, Connie and Loretta, for your comments. It is very helpful and much appreciated to get input from other members of the gluten-free community.

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